Tag Archives: Carobel

26 August 2014 – Letter to dietician…

Posted on October 28, 2014 by florencejoy

So, as my answer phone message said… So nearly two weeks ago, I went in to find that Toby had pulled his tube out in the night. This happens a lot and usually I just have to put it back … Continue reading →

Posted in Toby | Tagged bolus feed, Carobel, children's health, dehydration, dietician, ella's kitchen stage 2, feeding, feeding concerns, feeding pump, NG tube, Nutramigen AA, parenting, thickened formula, thickening agent, tube dependency, tube feeding, tube weaning, weaning | Leave a comment

18 August 2014 – Our bright-eyed boy!…

Posted on October 28, 2014 by florencejoy

Dear friends, The last week and a bit has been nothing but positive on the Toby’s progress front! At our last meeting with the gastroenterologist – at the end of July – it was agreed that, in view of the … Continue reading →

Posted in Toby | Tagged answered prayer, Carobel, champion, children's health, chromosomes, cranio-facial, developmental delay, dietician, encouragement, geneticist, gross-motor skill delay, hope, Metopic Synostosis, mild low tone, mother's intuition, neurologist, NG tube, paediatric gastroenterologist, parental instinct, parenting, Prader-Willi Syndrome, prayer request, premature birth, prematurity, thickening agent, trust, trusting God, tube feeding, tube weaning, tube-weaned baby, unifying cause, weaning | Leave a comment

Update from paediatric ward…

Posted on October 26, 2014 by florencejoy

Hello one and all, Toby’s review with the SALT (Speech And Language Therapy) team today gave cause for concern… Nothing wrong with Toby’s sucking ability but it would seem that the mechanics involved in safely swallowing the milk, whilst protecting … Continue reading →