Tag Archives: feeding pump

23 September 2014 – Appointment with neurologist…

Posted on October 28, 2014 by florencejoy

Hello friends and family… Today I took Toby for his appointment with the neurologist. It was a positive appointment and we met with a very friendly and thorough consultant who clearly knew what it was he needed to ask and … Continue reading →

Posted in Toby | Tagged baby, blessing of children, children's health, community, Dedication, developmental delay, developmental milestones, faith, feeding, feeding concerns, feeding pump, friendship, geneticist, get there in the end, gift of children, God is good, grace, grace of God, love, metabolic, MRI scan, neurologist, NG tube, onwards and upwards, parenting, prayer, progress, support, thyroid function, tube feeding, tube weaning | Leave a comment

26 August 2014 – Letter to dietician…

Posted on October 28, 2014 by florencejoy

So, as my answer phone message said… So nearly two weeks ago, I went in to find that Toby had pulled his tube out in the night. This happens a lot and usually I just have to put it back … Continue reading →

Posted in Toby | Tagged bolus feed, Carobel, children's health, dehydration, dietician, ella's kitchen stage 2, feeding, feeding concerns, feeding pump, NG tube, Nutramigen AA, parenting, thickened formula, thickening agent, tube dependency, tube feeding, tube weaning, weaning | Leave a comment

26 May 2014 – Letter to dietician…

Posted on October 28, 2014 by florencejoy

I only have your email address out of the dieticians and don’t have the Speech and Language Therapist’s or the Gastroenterologist’s email address. I wanted to describe something to you and wondered if you would kindly pass this on to … Continue reading →

Posted in Toby | Tagged children's health, cow's milk allergy, cow's milk protein hypersensitivity, dietician, feeding pump, gastroscopy, NG tube, Nutramigen AA, paediatric gastroenterologist, parenting, SALT, Speech and Language Therapy, starvation techniques, survival feeding, tube dependency, tube feeding, tube weaning | Leave a comment

16 May 2014 – Toby’s medical history to date – Actual age: 32+5 weeks / Corrected age: 25 weeks…

Posted on October 28, 2014 by florencejoy

Upon writing a letter to a friend of my parents-in-law, who works in the medical profession, seeking advice as to how to move forward, I had to bring my records of Toby’s medical journey up to date. Here they are, … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, 32+2 weeks gestation, abdominal pain, anti-reflux milk, aspirating milk, aspiration, barium x-ray, bilateral inguinal hernia, bolus feeding, breathing difficulties, breathlessness, bronchiolitis, cardiologist, children's health, choking, chromosome check, chronic congestion, colic, colicky, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, Domperidone, early weaning, Enfamil AR, expressing, feeding, feeding concerns, feeding diary, feeding pump, feeding therapy, forceful vomiting, gagging, high respiratory rate, hole in the heart, medical history, MRI scan, neonatal unit, neurological, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, Omeprazole, palivizumab, parenting, pneumonia, poor feeding, poor weight gain, premature, Prevention and Treatment of Tube Dependency in Infancy and Early Childhood, projectile vomit, pyloric stenosis, reflux, refusal to feed, RSV vaccine, SAGE, SALT, second opinion, silent aspiration, silent reflux, SMA Gold Prem 2, Speech and Language Therapy, starvation techniques, suck, syringe feeding, tongue thrusting, tongue-tie, tongue-tie release, tube dependency, tube feeding, tube weaning, umbilical hernia, unsafe swallow, video fluoroscopy, VSD, weaning, weight dropping off centiles, wheezing | Leave a comment

14 April 2014 – It’s about time we sent some good news!

Posted on October 26, 2014 by florencejoy

We had another appointment with the gastroenterologist on Thursday. His opinion is that he thinks that the various tests that have been done all suggest that there is nothing actually ‘wrong’ with Toby other than a cow’s milk protein allergy. … Continue reading →

Posted in Toby | Tagged 32 weeks, barium swallow, cardiology, children's health, colic, cow's milk allergy, cow's milk protein hypersensitivity, depression, dietician, digestive system, diuretics, Easter, feeding, feeding aversion, feeding concerns, feeding pump, God's faithfulness, gratitude, hypoallergenic formula, neonatal unit, neurological concerns, new life, NG tube, paediatric gastroenterologist, parenting, perspective, premature, projectile vomit, reflux, spring, stomach emptying, thankfulness, tongue thrusting, tube feeding, unsafe swallow, VSD, weaning | Leave a comment

7 April 2014 – Questions for our next meeting with gastroenterologist…

Posted on October 26, 2014 by florencejoy

We have written our thoughts/questions/concerns/symptoms ready for our next meeting with the gastroenterologist on Thursday. Got to make the most of every minute in there if the wait between each appointment is going to be six weeks!! ~ Thoughts / … Continue reading →

Posted in Toby | Tagged 2nd centile, abdominal breathing, children's health, choking, chronic congestion, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, developmental milestone, early weaning, endoscopy, feeding, feeding aversion, feeding difficulties, feeding pump, feeding therapy, flat head, gagging, high respiratory rate, hoarse voice, inguinal hernia, moro reflex, muscular breathing, neck strength, neurological, NG tube, Nutramigen AA, oesophogitis, parenting, Plagiocephaly, positive feeding experience, projectile vomiting, reflux, sitting, SMA, startling, stomach emptying, tongue thrusting, tube dependency, tube feeding, tube weaning, video fluoroscopy, VSD | Leave a comment

26 March 2014 – Toby’s head! – Letter to GP…

Posted on October 26, 2014 by florencejoy

I have an appointment to see you with Toby next Monday morning. Just a heads up – it’s to check out Toby’s flathead, which strikes me as being pretty severe? (Considerable misalignment of his ears). Trying repositioning on mattress at … Continue reading →