Tag Archives: forceful vomiting

Letter to NNU consultant…

Posted on October 28, 2014 by florencejoy

I had one question with regards feedback from the neurologist. He ended his summary suggesting that some blood and urine chemistry testing is done (if it hasn’t already been) to screen for inborn errors of metabolism. He suggested arranging: blood … Continue reading →

Posted in Toby | Tagged abdominal pain, blood chemistry testing, blood CK, breathing difficulties, calcium levels, cardiologist, children's health, colic, colicky, cow's milk allergy, cow's milk protein hypersensitivity, feeding, feeding difficulties, forceful vomiting, homocysteine, Hypercalcemia, inborn errors of metabolism, microarray-based CGH, neurologist, ng, parenting, plasma amino acids, projectile vomit, refusal to feed, thyroid function tests, tube feeding, uric acid, urine amino acids, urine chemistry testing, urine organic acids, Williams Syndrome | Leave a comment

24 October 2014 – Letter to geneticist – further questions…

Posted on October 28, 2014 by florencejoy

I have a few thoughts that I wanted to air and I find it easier to lay them out on paper, as it were – but I don’t mind if you would rather speak on the phone than respond by … Continue reading →

Posted in Toby | Tagged abdominal breathing, abdominal pain, amino acid based formula, blood chemistry testing, blood CK, breathing difficulties, cardiology, children's health, colic, colicky, cow's milk allergy, cow's milk protein hypersensitivity, enriched formula, feeding, forceful vomiting, fussy baby, geneticist, homocysteine, Hypercalcemia, hypoallergenic formula, Hypophosphatasia, inborn errors of metabolism, joint laxity, Metopic Synostosis, microarray-based CGH, mytopic suture, neurologist, NG tube, Nutramigen AA, paediatric gastroenterologist, parenting, Plagiocephaly, plasma amino acids, projectile vomit, recessing under rib cage, reflux, refusal to feed, silent reflux, SMA Gold Prem 2, thyroid function tests, tube feeding, uric acid, urine amino acids, urine chemistry testing, urine organic acids, wheezing, Williams Syndrome | Leave a comment

21 October 2014 – Letter to geneticist…

Posted on October 28, 2014 by florencejoy

My son, Toby, and I met you and your colleague in clinic last Friday 17 October. Your colleague shared that she suspected Toby might have Williams Syndrome and he had blood taken to be sent off for an array CGH. … Continue reading →

Posted in Toby | Tagged abdominal pain, children's health, chromosome check, chromosome study, colic, colicky, delayed motor skills, digestive problems, failure to gain weight appropriately in infancy, failure to thrive, forceful vomiting, gastrointestinal problems, geneticist, genticist, heart defects, heart murmur, low muscle tone, micro-array CGH, neurotic mother, Noonan Syndrome, parenting, Prader-Willi Syndrome, projectile vomit, reflux, sociable nature, trouble breastfeeding, VSD, Williams Syndrome | Leave a comment

5 July 2014 – Letter to NNU Consultant – Nagging thoughts/concerns…

Posted on October 28, 2014 by florencejoy

After our appointment with you it was decided to book Toby in for a blood test to do a chromosome study, in order to check the presence of a rare syndrome, called Prader-Willi. My understanding is that the suspicion of … Continue reading →

Posted in Toby | Tagged 3mcc deficiency, abdominal pain, centronuclear myopathy, children's health, chromosome study, colic, delayed motor skills, failure to gain weight appropriately in infancy, failure to thrive, forceful vomiting, gastrointestinal problems, geneticist, gross developmental delay, heart defects, heart murmur, low muscle tone, missed miscarriage, neurotic parent, Noonan Syndrome, parenting, Prader-Willi Syndrome, premature birth, prematurity, pulmonary complications, reflux, sociable nature, subchorionic bleed, trouble breastfeeding, VSD, Williams Syndrome | Leave a comment

13 June 2014 – Letter to dietician…

Posted on October 28, 2014 by florencejoy

Great news is that about two weeks ago Toby stopped vomiting! It took us a while to even realised it had happened. We were away in Suffolk for a week and towards the end of the week realised that neither … Continue reading →

Posted in Toby | Tagged children's health, coughing, cow's milk allergy, cow's milk protein hypersensitivity, dietician, Ella's Kitchen, forceful vomiting, gastroscopy, NG tube, Nutramigen AA, parenting, Plum, projectile vomit, TOF, tracheoesophageal fistula, tube feeding, tube weaning | Leave a comment

Nice to be able to share some good news and progress…

Posted on October 28, 2014 by florencejoy

It may not seem all that big a deal to you – sick is, after all, only sick – but Toby has stopped vomiting and, for us, this is really wonderful news, which brings with it much relief! It took … Continue reading →

Posted in Toby | Tagged answered prayer, children's health, depression, feeding, feeding concerns, forceful vomiting, gratitude, miracle, NG tube, parenting, prayer, prayer request, projectile vomit, talking therapy, thankfulness, tube feeding | Leave a comment

22 May 2014 – Today’s consultation with gastroenterologist…

Posted on October 28, 2014 by florencejoy

Ahoy! We had a good meeting with the gastroenterologist this morning; by that I mean that we felt we were able to air all our thoughts and concerns, that we were heard and we felt more reassured by the feedback … Continue reading →

Posted in Toby | Tagged barium meal study, barium x-ray, bowel, children's health, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, entrance to bowel, feeding, feeding concerns, feeding cues, feeding difficulties, forceful vomiting, gastroscopy, hypoallergenic milk, inflammation, NG tube, paediatric gastroenterologist, parenting, prayer request, projectile vomit, pylorus, reflux, SALT, silent reflux, Speech and Language Therapy, starvation techniques, stomach emptying, swallow, swallow study, tube feeding, tube weaning, video fluoroscopy | Leave a comment

16 May 2014 – Toby’s medical history to date – Actual age: 32+5 weeks / Corrected age: 25 weeks…

Posted on October 28, 2014 by florencejoy

Upon writing a letter to a friend of my parents-in-law, who works in the medical profession, seeking advice as to how to move forward, I had to bring my records of Toby’s medical journey up to date. Here they are, … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, 32+2 weeks gestation, abdominal pain, anti-reflux milk, aspirating milk, aspiration, barium x-ray, bilateral inguinal hernia, bolus feeding, breathing difficulties, breathlessness, bronchiolitis, cardiologist, children's health, choking, chromosome check, chronic congestion, colic, colicky, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, Domperidone, early weaning, Enfamil AR, expressing, feeding, feeding concerns, feeding diary, feeding pump, feeding therapy, forceful vomiting, gagging, high respiratory rate, hole in the heart, medical history, MRI scan, neonatal unit, neurological, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, Omeprazole, palivizumab, parenting, pneumonia, poor feeding, poor weight gain, premature, Prevention and Treatment of Tube Dependency in Infancy and Early Childhood, projectile vomit, pyloric stenosis, reflux, refusal to feed, RSV vaccine, SAGE, SALT, second opinion, silent aspiration, silent reflux, SMA Gold Prem 2, Speech and Language Therapy, starvation techniques, suck, syringe feeding, tongue thrusting, tongue-tie, tongue-tie release, tube dependency, tube feeding, tube weaning, umbilical hernia, unsafe swallow, video fluoroscopy, VSD, weaning, weight dropping off centiles, wheezing | Leave a comment

15 May 2014 – Letter to parents – Thoughts about seeking ‘second opinion’ / feeding specialist…

Posted on October 28, 2014 by florencejoy

Letter to parents: Would it be possible to ask your friend whether he knows of a private feeding specialist? – as opposed to a gastroenterologist. Perhaps we do need to see the latter. However, depending of course upon the results … Continue reading →