Tag Archives: MRI scan

23 September 2014 – Appointment with neurologist…

Posted on October 28, 2014 by florencejoy

Hello friends and family… Today I took Toby for his appointment with the neurologist. It was a positive appointment and we met with a very friendly and thorough consultant who clearly knew what it was he needed to ask and … Continue reading →

Posted in Toby | Tagged baby, blessing of children, children's health, community, Dedication, developmental delay, developmental milestones, faith, feeding, feeding concerns, feeding pump, friendship, geneticist, get there in the end, gift of children, God is good, grace, grace of God, love, metabolic, MRI scan, neurologist, NG tube, onwards and upwards, parenting, prayer, progress, support, thyroid function, tube feeding, tube weaning | Leave a comment

16 May 2014 – Toby’s medical history to date – Actual age: 32+5 weeks / Corrected age: 25 weeks…

Posted on October 28, 2014 by florencejoy

Upon writing a letter to a friend of my parents-in-law, who works in the medical profession, seeking advice as to how to move forward, I had to bring my records of Toby’s medical journey up to date. Here they are, … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, 32+2 weeks gestation, abdominal pain, anti-reflux milk, aspirating milk, aspiration, barium x-ray, bilateral inguinal hernia, bolus feeding, breathing difficulties, breathlessness, bronchiolitis, cardiologist, children's health, choking, chromosome check, chronic congestion, colic, colicky, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, Domperidone, early weaning, Enfamil AR, expressing, feeding, feeding concerns, feeding diary, feeding pump, feeding therapy, forceful vomiting, gagging, high respiratory rate, hole in the heart, medical history, MRI scan, neonatal unit, neurological, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, Omeprazole, palivizumab, parenting, pneumonia, poor feeding, poor weight gain, premature, Prevention and Treatment of Tube Dependency in Infancy and Early Childhood, projectile vomit, pyloric stenosis, reflux, refusal to feed, RSV vaccine, SAGE, SALT, second opinion, silent aspiration, silent reflux, SMA Gold Prem 2, Speech and Language Therapy, starvation techniques, suck, syringe feeding, tongue thrusting, tongue-tie, tongue-tie release, tube dependency, tube feeding, tube weaning, umbilical hernia, unsafe swallow, video fluoroscopy, VSD, weaning, weight dropping off centiles, wheezing | Leave a comment

We’re home…

Posted on October 26, 2014 by florencejoy

Toby and I joined Eddie and Isobel at home today. Toby continues to be tube feeding only, until further investigations in to his swallow etc. have been made and we have got to the bottom of the problem and made … Continue reading →

Posted in Toby | Tagged children's health, chromosome check, feeding aversion, MRI scan, NG tube, parenting, SALT, swallow, swallow study, tube feeding, unsafe swallow, video fluoroscopy | Leave a comment

30 January 2014 – Isobel’s okay…

Posted on October 26, 2014 by florencejoy

Ed discharged Isobel whilst waiting in A&E – his feeling was that a good night’s sleep was probably a better healer than an unknown wait to be seen, which was proving difficult – and her temperature had dropped a little … Continue reading →

Posted in Toby | Tagged children's health, MRI scan, parenting, SALT | Leave a comment

Update from paediatric ward…

Posted on October 26, 2014 by florencejoy

Hello one and all, Toby’s review with the SALT (Speech And Language Therapy) team today gave cause for concern… Nothing wrong with Toby’s sucking ability but it would seem that the mechanics involved in safely swallowing the milk, whilst protecting … Continue reading →