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Tag Archives: NNU
19 June 2014 – Toby’s Update…
Hello friends, We had an appointment with the gastroenterologist this morning. We are going ahead with the gastroscopy on Monday morning, in order to eliminate the nagging question mark that still lingers as to whether there is anything wrong in … Continue reading
Posted in Toby
Tagged 9 month old, baby, children's health, Craniosynostosis, delayed development, developmental delay, developmental milestones, duodentitis, faith, friendship, gastroscopy, God is good, healing, Metopic Synostosis, neck strength, neurological, NNU, oesophagitis, paediatric gastroenterologist, parenting, prayer request, rolling, sitting up, steadfastness, support, Tobias, TOF, tracheoesophageal fistula, trust, trusting God, upper airway secretions, video fluoroscopy
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14 February 2014 – Letter to gastroenterologist…
Forgive me for using this email address to try to get a message to the gastroenterologist. We are actually due to be seeing him in his NHS clinic on 27/02/14 – after having heard from Toby’s Speech And Language Therapist … Continue reading
Posted in Toby
Tagged 32+2 weeks gestation, aspiration, bilateral inguinal hernia, breathing difficulties, children's health, chronic congestion, cow's milk protein hypersensitivity, CPAP, Enfamil AR, feeding, feeding concerns, high respiratory rate, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, paediatric gastroenterologist, palivizumab, parenting, poor feeding, prematurity, reflux, RSV vaccine, SALT, tongue-tie, tongue-tie release, tube feeding, umbilical hernia, video fluoroscopy, VSD
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29 January 2014 – Progress…
I feel a little more confident today. Yesterday evening the nurses started to teach me how to aspirate, pH test and tube feed Toby – in case he needs to come home with the NG tube. Have done this twice … Continue reading
Posted in Toby
Tagged aspirate, children's health, feeding, friendship, hospital, neonatal unit, NG tube, NNU, parenting, pH test, prayer, SALT, Speech and Language Therapy, support, swallow, tube feeding, unsafe swallow
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23 January 2014 – An update for our GP…
The nurse from the hospital NNU who visits in the community came round to weigh Toby yesterday. He had gained 40g over 8 days. He is gaining at least – albeit very slowly. She said that he’s ‘on the fence’ … Continue reading
12 December 2013 – An update (if you can bear another!)…
I thought it was about time to give you a little more news. Things are looking quite Christmassy around here, with our Christmas tree in place, our lovely nativity scene in situ and advent calendars galore (what are grandparents for?!) … Continue reading
Posted in Toby
Tagged all things together for good, answered prayer, baby, cardiology, children's health, Christmas, colic, colicky, community, diuretics, family, feeding, God is good, God's faithfulness, God's provision, home, inguinal hernia, neonatal unit, NNU, parenting, prematurity, redundancy, unity, VSD
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2 November 2013 – Toby’s HOME!!!!
Tobias Asher Jacob… 35 days… 37 weeks & 1 day gestation… Due date 22 November… Birthday 29 September… Birth weight 1.790kg… Current weight 2.525kg… What a soldier! What a good God! :-) xxxxx
Posted in Toby
Tagged 2.525kg, 35 days old, 37+1 weeks gestation, answered prayer, Asher, baby, bringing baby home, children's health, family life, God's goodness, home, hospital, Jacob, neonatal unit, NNU, parenting, perseverence, premature baby, premature birth, prematurity, Tobias
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Phew!
I am sitting back in ‘our spot’ in the Special Care nursery at our local hospital Neonatal Unit – Toby’s home for the last one month and three days (minus a rather ‘hairy’ two night sleep-over elsewhere!) All the tubes … Continue reading
Posted in Toby
Tagged baby, children's health, faith, feeding, God's goodness, hernia, hope, horizon, hospital, inguinal hernia, neonatal unit, NNU, operation, oxygen saturation levels, parenting, premature baby, premature birth, prematurity, progress, Special care unit, tongue tie division, tongue-tie, trust, trusting God
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1 November 2013 – Update…
The intubator has now been removed and Toby is breathing mostly on his own, but he now has the support from a CPAP machine (continuous positive airway pressure). His respiratory rate is higher than the normal range at the moment. … Continue reading
Posted in Toby
Tagged anaesthetic, baby, blood acidity, blood gas levels, breathing difficulties, chest x-ray, children's health, continuous positive airway pressure, CPAP, Emmanuel, God is with us, hernia, hospital, ICU, Immanuel, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe of lung collapsed, motherhood, neonatal unit, NNU, parenting, premature baby, premature birth, prematurity, reaction to anaesthetic, respiratory failure, ventilator
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Toby’s hernia op today…
This morning I met the anaesthetist, who was happy to go ahead and anaesthetise Toby for his hernia operation. He had no feeds from 8am in preparation and at 3.45pm I kissed Toby goodbye at the door to theatre. I … Continue reading
Posted in Toby
Tagged AVSD, baby, children's health, congenital heart disease, family life, Father's arms, feeding, feeding difficulties, heart problem, hernia, hospital, ICU, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe in lung collapsed, motherhood, neonatal unit, NNU, operation, parenting, perseverence, premature baby, premature birth, prematurity, reaction to anaesthetic, tongue tie division, tongue-tie, trouble breathing, ventilator
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To my friend, Jean…
Dear Jean, Quick update for you as I was just letting family know the following for now… Anaesthetist happy to go ahead with hernia op. Will be this afternoon, though no time as yet. Will no doubt stay in at … Continue reading
Posted in Toby
Tagged baby, children's health, encouragement, faith, faithfulness, feeding, feeding difficulties, friendship, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, perseverence, prayer, prayer request, premature baby, premature birth, prematurity, tongue tie division, tongue-tie
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Ed’s message on Facebook…
Our son Toby has his hernia operation today bless him. We think he may finally come home tomorrow. If you are the praying sort, this is the final push. We ask that he wakes well from the anaesthetic, comes out … Continue reading
Posted in Toby
Tagged baby, children's health, faith, healing, heart, hernia, inguinal hernia, Jesus, neonatal unit, NNU, parenting, prayer, prayer request, prematurity, You will do even greater things
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30 October 2013 – Some progress…
Ed and I prayed specifically on Monday that God would put people across Toby’s path who would make the right phone calls, send the right letters etc. in order to move things along. I arrived at hospital yesterday to discover … Continue reading
Posted in Toby
Tagged answered prayer, baby, children's health, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, progress
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29 October 2013 – Update on hernia op etc.
So, no date set for Toby’s hernia operation yet. It will not be today, as we had thought. The anaesthesiologist has said that he/she wants Toby to have a cardiology report before they decide if they are happy to administer … Continue reading
Posted in Toby
Tagged anaesthesiologist, baby, cardiologist, cardiology, children's health, delay, faith, general anaesthetic, God is good, God's faithfulness, God's ways, heart condition, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, patience, peace, premature baby, premature birth, prematurity, Romans 8, Romans 8:28, timing, trust, trusting God, waiting
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A most confusing day…
It has been such a mixed week. On Wednesday Toby turned a massive corner with his feeds – literally overnight. He is now waking up and demanding every feed and loving to suckle. Taking complete bottles and feeding really well … Continue reading
Posted in Toby
Tagged anti-climax, baby, children's health, coming home, disappointment, discharged, faith, feeding, God's faithfulness, God's goodness, God's plan, hernia, hospital, inguinal hernia, miscommunication, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, progress, rooming in, SCBU, setback, shifting emotions, Special Care Baby Unit, timing, trust, trusting God
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He’s not home yet :-(
I shared news too soon. Forgive me. Toby is not home with us. He has a hernia (which was discovered on Wednesday). We had been told that he could come home with it, as it was still soft, and that … Continue reading
Posted in Toby
Tagged anti-climax, baby, children's health, deflated, disappointment, faith, God's faithfulness, God's goodness, God's plan, hernia, hospital, inguinal hernia, miscommunication, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, sadness, timing, trust, trusting God
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26 October 2013 – He’s coming home!
I still won’t believe it until it actually happens – but I roomed in with Toby last night, with a view to taking him home TODAY! I won’t believe it until he is over the threshold of our home and … Continue reading
Posted in Toby
Tagged baby, children's health, coming home, feeding, hospital, neonatal unit, NNU, parenting, premature baby, progress
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23 October 2013 – Weight gain…
Tobias is now 5lb… That’s 1lb 1oz gain since birth. Good boy :-)
Posted in Toby
Tagged baby, children's health, neonatal unit, NNU, parenting, premature baby, premature birth, prematurity, weight gain
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13 October 2013 – Discovered a heart problem…
We discovered yesterday that Toby has a problem with his heart. It is a form of congenital heart disease, called an AVSD. It’s basically a hole in the heart, between the two chambers, which means that the blood from both … Continue reading
Posted in Toby
Tagged abdominal pain, AVSD, baby, breathing difficulties, cardiologist, children's health, complete AVSD, congenital heart disease, faith, God is good, God's faithfulness, God's goodness, healing, heart concerns, heart problem, hole in the heart, holes in the heart, hospital, neonatal unit, NNU, open heart surgery, parenting, prayer, prayer request, premature birth, prematurity, rooming in, Tobias, trust, trusting God
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florencejoy 