Tag Archives: feeding difficulties

5 February 2015 – A catch up on Toby (& me a little…)

Posted on February 7, 2015 by florencejoy

Hello again friends, Long time – but the expression ‘no news is good news’ is quite right in this case. We are so pleased with – & thankful for – how Toby is doing. If you want to skip straight … Continue reading →

Posted in Toby | Tagged anti-depressants, children, children's health, cow's milk allergy, cow's milk protein hypersensitivity, depression, developmental delay, faith, feeding difficulties, heart condition, occupational therapy, parenting, physiotherapy, poetry, trust, trusting God, VSD | 1 Comment

Letter to NNU consultant…

Posted on October 28, 2014 by florencejoy

I had one question with regards feedback from the neurologist. He ended his summary suggesting that some blood and urine chemistry testing is done (if it hasn’t already been) to screen for inborn errors of metabolism. He suggested arranging: blood … Continue reading →

Posted in Toby | Tagged abdominal pain, blood chemistry testing, blood CK, breathing difficulties, calcium levels, cardiologist, children's health, colic, colicky, cow's milk allergy, cow's milk protein hypersensitivity, feeding, feeding difficulties, forceful vomiting, homocysteine, Hypercalcemia, inborn errors of metabolism, microarray-based CGH, neurologist, ng, parenting, plasma amino acids, projectile vomit, refusal to feed, thyroid function tests, tube feeding, uric acid, urine amino acids, urine chemistry testing, urine organic acids, Williams Syndrome | Leave a comment

7 July 2014 – Letter to dietician…

Posted on October 28, 2014 by florencejoy

Quite a lot has gone on actually. We had Toby’s gastroscopy two weeks ago today. Everything looked pretty pristine in there apparently. They took some biopsies too, the results of which I’ve not heard back about yet – but I’m … Continue reading →

Posted in Toby | Tagged 9 month old, children's health, chromosome test, craniofacial, delayed development, developmental delay, dietician, feeding concerns, feeding difficulties, floppy core, floppy trunk, gastroscopy, geneticist, gross motor delay, http://www.new-vis.com/fym/papers/p-feed5.htm, low tone, Metopic Synostosis, neck strength, NG tube, not sitting up, paediatric gastroenterologist, parenting, physiotherapist, poor feeding, Prader-Willi Syndrome, SALT, Speech and Language Therapy, tube feeding, video fluoroscopy, weak core strength | Leave a comment

10 June 2014 – Talking therapy – referral…

Posted on October 28, 2014 by florencejoy

Letter to GP: Thank you. I have attached the completed form. ~ Excerpt from the therapy referral form: Description of the difficulties: Clinical Problems: 1) Please describe the nature of your difficulties in your own words, mentioning the main problems, … Continue reading →

Posted in Toby | Tagged breathing room, children's health, church, circumstancial depression, community, depression, faith, family doctor, family life, feeding difficulties, GP, head space, hope, love, marriage, neurotic mother, NG tube, parenting, post viral fatigue syndrome, respite, situational depression, stress, talking therapy, time out, tube feeding | Leave a comment

22 May 2014 – Today’s consultation with gastroenterologist…

Posted on October 28, 2014 by florencejoy

Ahoy! We had a good meeting with the gastroenterologist this morning; by that I mean that we felt we were able to air all our thoughts and concerns, that we were heard and we felt more reassured by the feedback … Continue reading →

Posted in Toby | Tagged barium meal study, barium x-ray, bowel, children's health, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, entrance to bowel, feeding, feeding concerns, feeding cues, feeding difficulties, forceful vomiting, gastroscopy, hypoallergenic milk, inflammation, NG tube, paediatric gastroenterologist, parenting, prayer request, projectile vomit, pylorus, reflux, SALT, silent reflux, Speech and Language Therapy, starvation techniques, stomach emptying, swallow, swallow study, tube feeding, tube weaning, video fluoroscopy | Leave a comment

7 April 2014 – Questions for our next meeting with gastroenterologist…

Posted on October 26, 2014 by florencejoy

We have written our thoughts/questions/concerns/symptoms ready for our next meeting with the gastroenterologist on Thursday. Got to make the most of every minute in there if the wait between each appointment is going to be six weeks!! ~ Thoughts / … Continue reading →

Posted in Toby | Tagged 2nd centile, abdominal breathing, children's health, choking, chronic congestion, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, developmental milestone, early weaning, endoscopy, feeding, feeding aversion, feeding difficulties, feeding pump, feeding therapy, flat head, gagging, high respiratory rate, hoarse voice, inguinal hernia, moro reflex, muscular breathing, neck strength, neurological, NG tube, Nutramigen AA, oesophogitis, parenting, Plagiocephaly, positive feeding experience, projectile vomiting, reflux, sitting, SMA, startling, stomach emptying, tongue thrusting, tube dependency, tube feeding, tube weaning, video fluoroscopy, VSD | Leave a comment

Toby – post meeting with gastroenterologist etc….

Posted on October 26, 2014 by florencejoy

Once again, I’m sorry for the tardiness of this update, especially if you’ve been waiting for news post our meeting with the gastroenterologist the Thursday before last (27 Feb). Our meeting with the gastroenterologist: Our meeting with the gastroenterologist had … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, breathing difficulties, children's health, Christianity, church, community, coughing, early weaning, faith, feeding aversion, feeding diary, feeding difficulties, frequent hiccups, love, neurological, NG tube, paediatric gastroenterologist, parenting, positive feeding experiences, prayer, projectile vomit, Psalm 56, reflux, stand in the gap, support, testing times, tube feeding | Leave a comment

30 December 2013 – Letter to the consultant arranging Toby’s second inguinal hernia op…

Posted on October 26, 2014 by florencejoy

Letter to consultant responsible for arranging Toby’s second inguinal hernia op, making our case for the operation to be booked in sooner than the date we were (finally!) given: Dear sir, You may remember that my husband and I brought … Continue reading →

Posted in Toby | Tagged abdominal pain, anaesthetic, baby, children's health, discomfort, feeding, feeding difficulties, fussy baby, hernia operation, ICU, inguinal hernia, Letter to consultant, neonatal unit, NHS, parenting, Special care unit, VSD | Leave a comment

27 November 2013 – Ed’s work situation & Toby’s heart etc.!…

Posted on October 26, 2014 by florencejoy

So, tomorrow is Ed’s last day working for the property company, where he has worked as an electrician in their maintenance wing for just over a year now. You will remember from my last update that they gave him a … Continue reading →

Posted in Toby | Tagged baby, cardiology, children's health, diuretics, feeding, feeding difficulties, healing, hernia, hole in the heart, inguinal hernia, laboured breathing, open heart surgery, parenting, patience, petition, prayer, prematurity, recessing under rib cage, redundancy, siblings, stress, toddler, VSD, waiting, weariness | Leave a comment

Toby’s hernia op today…

Posted on August 13, 2014 by florencejoy

This morning I met the anaesthetist, who was happy to go ahead and anaesthetise Toby for his hernia operation. He had no feeds from 8am in preparation and at 3.45pm I kissed Toby goodbye at the door to theatre. I … Continue reading →

Posted in Toby | Tagged AVSD, baby, children's health, congenital heart disease, family life, Father's arms, feeding, feeding difficulties, heart problem, hernia, hospital, ICU, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe in lung collapsed, motherhood, neonatal unit, NNU, operation, parenting, perseverence, premature baby, premature birth, prematurity, reaction to anaesthetic, tongue tie division, tongue-tie, trouble breathing, ventilator | Leave a comment

To my friend, Jean…

Posted on August 13, 2014 by florencejoy

Dear Jean, Quick update for you as I was just letting family know the following for now… Anaesthetist happy to go ahead with hernia op. Will be this afternoon, though no time as yet. Will no doubt stay in at … Continue reading →