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Tag Archives: diuretics
28 July 2014 – All things Toby…
Hello friends, It’s been over three weeks since our last update so I thought I would fill you in on news from recent hospital visits and progress etc. A few weeks ago I was reading over some of those first … Continue reading
Posted in Toby
Tagged answered prayer, AVSD, blessing of life, breathing difficulties, bring your soul into blossom, cardiologist, children's health, chromosome check, cow's milk allergy, cow's milk protein hypersensitivity, cranio-facial, death, diuretics, eternity, everlasting love, faith, faithfulness, feeding, feeding concerns, feeding problems, friends, G-tube, geneticist, gift of children, gift of life, glimpses of eternity, God's faithfulness, gratitude, gross motor delay, healing, heaven, hole in the heart, hope, lyrics, Metopic Synostosis, mild low tone, miracle, music, NG tube, Nutramigen AA, parenting, Prader-Willi Syndrome, SALT, short memories, song, songwriting, Speech and Language Therapy, swallow study, thankfulness, the blossoming soul, trust, tube feeding, video fluoroscopy, VSD, weaning
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20 February 2014 – The latest news from Toby et al…
Hi dear friends, It’s been a while since we gave you the latest on Toby and I’m sorry if you have been waiting to hear news of his videofluoroscopy last Tuesday… Videofluroscopy: The video fluoroscopy actually rather frustrating. As my … Continue reading
Posted in Toby
Tagged amino acid based formula, aneurismal tricuspid valve tissue, cardiology, children's health, cow's milk protein hypersensitivity, diuretics, Emmanuel, feeding, feeding aversion, feeding concerns, feeding cup, NG tube, Nutramigen AA, paediatric gastroenterologist, parenting, reflux, SALT, silent aspiration, thickened formula, tube feeding, video fluoroscopy, VSD
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Letter to my GP…
I have a few questions, I hope you don’t mind. The answers can wait – I appreciate you are very busy. Domperidone: the instructions are to give Toby 3 x 0.8ml doses over a 24 hour period, 30-60 minutes prior … Continue reading
12 December 2013 – An update (if you can bear another!)…
I thought it was about time to give you a little more news. Things are looking quite Christmassy around here, with our Christmas tree in place, our lovely nativity scene in situ and advent calendars galore (what are grandparents for?!) … Continue reading
Posted in Toby
Tagged all things together for good, answered prayer, baby, cardiology, children's health, Christmas, colic, colicky, community, diuretics, family, feeding, God is good, God's faithfulness, God's provision, home, inguinal hernia, neonatal unit, NNU, parenting, prematurity, redundancy, unity, VSD
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27 November 2013 – Ed’s work situation & Toby’s heart etc.!…
So, tomorrow is Ed’s last day working for the property company, where he has worked as an electrician in their maintenance wing for just over a year now. You will remember from my last update that they gave him a … Continue reading
Posted in Toby
Tagged baby, cardiology, children's health, diuretics, feeding, feeding difficulties, healing, hernia, hole in the heart, inguinal hernia, laboured breathing, open heart surgery, parenting, patience, petition, prayer, prematurity, recessing under rib cage, redundancy, siblings, stress, toddler, VSD, waiting, weariness
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22 November 2013 – A mixed bag…
Today, Friday 22 November, marks Toby’s due date and meant-to-be birthday! Ha ha! We all know by now that he was a little impatient and decided to make his entrance in to the world nearly 8 weeks ago! So is … Continue reading
Posted in Toby
Tagged 40 weeks, 7+5 weeks, cardiologist, children's health, diuretics, due date, faith, friendship, full term, generosity, God's faithfulness, hernia, inguinal hernia, kindness, love, nothing is impossible with God, parenting, prayer, premature baby, premature birth, prematurity, redundancy, support, VSD
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16 November 2013 – Some news from our family…
My updates are few and far between now I realise – at least in contrast to the frequency I wrote them in the first 5/6 weeks of Toby’s life! We are tired now that he is home. Tired in a … Continue reading
Posted in Toby
Tagged blessed, bottle feeding, breastfeeding, challenged, children's health, church, church family, cling on, community, discouraged, diuretics, downhearted, ebm, enlarged heart, expressed breast milk, expressing, faith, feeding, fellowship, fluid on lungs, friendship, happy, love, mighty God, parenting, practical support, prayer, premature baby, premature birth, prematurity, support, tempted, tired, VSD
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13 November 2013 – Trip to A&E…
In A&E waiting for Toby’s first intravenous shot of diuretics to flush fluid from the lungs. Brought him in today with Isobel at 12.30pm. Ed just been and gone with Isobel so I’m now here with him. Isobel was so … Continue reading
Posted in Toby
Tagged A&E, baby, breathing difficulties, children's health, congestion, diuretics, enlarged heart, feeding, fluid on lungs, parenting, premature baby, prematurity, rattly chest
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