Tag Archives: wheezing

24 October 2014 – Letter to geneticist – further questions…

Posted on October 28, 2014 by florencejoy

I have a few thoughts that I wanted to air and I find it easier to lay them out on paper, as it were – but I don’t mind if you would rather speak on the phone than respond by … Continue reading →

Posted in Toby | Tagged abdominal breathing, abdominal pain, amino acid based formula, blood chemistry testing, blood CK, breathing difficulties, cardiology, children's health, colic, colicky, cow's milk allergy, cow's milk protein hypersensitivity, enriched formula, feeding, forceful vomiting, fussy baby, geneticist, homocysteine, Hypercalcemia, hypoallergenic formula, Hypophosphatasia, inborn errors of metabolism, joint laxity, Metopic Synostosis, microarray-based CGH, mytopic suture, neurologist, NG tube, Nutramigen AA, paediatric gastroenterologist, parenting, Plagiocephaly, plasma amino acids, projectile vomit, recessing under rib cage, reflux, refusal to feed, silent reflux, SMA Gold Prem 2, thyroid function tests, tube feeding, uric acid, urine amino acids, urine chemistry testing, urine organic acids, wheezing, Williams Syndrome | Leave a comment

16 May 2014 – Toby’s medical history to date – Actual age: 32+5 weeks / Corrected age: 25 weeks…

Posted on October 28, 2014 by florencejoy

Upon writing a letter to a friend of my parents-in-law, who works in the medical profession, seeking advice as to how to move forward, I had to bring my records of Toby’s medical journey up to date. Here they are, … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, 32+2 weeks gestation, abdominal pain, anti-reflux milk, aspirating milk, aspiration, barium x-ray, bilateral inguinal hernia, bolus feeding, breathing difficulties, breathlessness, bronchiolitis, cardiologist, children's health, choking, chromosome check, chronic congestion, colic, colicky, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, Domperidone, early weaning, Enfamil AR, expressing, feeding, feeding concerns, feeding diary, feeding pump, feeding therapy, forceful vomiting, gagging, high respiratory rate, hole in the heart, medical history, MRI scan, neonatal unit, neurological, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, Omeprazole, palivizumab, parenting, pneumonia, poor feeding, poor weight gain, premature, Prevention and Treatment of Tube Dependency in Infancy and Early Childhood, projectile vomit, pyloric stenosis, reflux, refusal to feed, RSV vaccine, SAGE, SALT, second opinion, silent aspiration, silent reflux, SMA Gold Prem 2, Speech and Language Therapy, starvation techniques, suck, syringe feeding, tongue thrusting, tongue-tie, tongue-tie release, tube dependency, tube feeding, tube weaning, umbilical hernia, unsafe swallow, video fluoroscopy, VSD, weaning, weight dropping off centiles, wheezing | Leave a comment

23 January 2014 – An update for our GP…

Posted on October 26, 2014 by florencejoy

The nurse from the hospital NNU who visits in the community came round to weigh Toby yesterday. He had gained 40g over 8 days. He is gaining at least – albeit very slowly. She said that he’s ‘on the fence’ … Continue reading →

Posted in Toby | Tagged breathlessness, children's health, congested, cow's milk allergy, Dysphagia, Enfamil AR, feeding, GP, hypoallergenic milk, NG tube, NNU, Nutramigen Lipil 1, paediatric gastroenterologist, parenting, reflux, refusal to feed, syringe feeding, wheezing | Leave a comment

Letter to my GP…

Posted on October 26, 2014 by florencejoy

I have a few questions, I hope you don’t mind. The answers can wait – I appreciate you are very busy. Domperidone: the instructions are to give Toby 3 x 0.8ml doses over a 24 hour period, 30-60 minutes prior … Continue reading →

Posted in Toby | Tagged breathlessness, cardiologist, children's health, diuretics, Domperidone, feeding, feeding concerns, GORD, GP, neurotic mother, Omeprazole, parenting, premature baby, prematurity, reflux, respiratory problems, thickened formula, wheezing | Leave a comment

10 January 2014 – Smiles & news…

Posted on October 26, 2014 by florencejoy

Toby has recovered well from his hernia op last Friday. We think the op has seemed to help his bowel movements, which now seem more regular, so that’s got to be good (even if you’d rather not know about our … Continue reading →