Tag Archives: tongue-tie

25 November 2014 – Consolidated list of Toby’s symptoms / observations to date…

Posted on November 25, 2014 by florencejoy

Hi again, Here is the consolidated list of symptoms/observations to date. I hope it is helpful to have a quick (& roughly chronological) reference and overview of Toby’s medical history – I certainly found it useful to write it all … Continue reading →

Posted in Toby | Tagged 24 hour pH study, anesthesia risks, ASD, axial hypotonia, baby, barium swallow, bilateral inguinal hernia, calcium levels, children's health, chronic constipation, colic, congenital heart defects, cow's milk protein allergy, developmental delay, feeding problems, gastroscopy, gross motor delay, growth problems, happy nature, head shape, heightened gag reflex, joint laxity, language delay, Metopic Synostosis, MRI, nasal regurgitation, NG tube, noisy excessive upper airway secretions, Oligohydramnios, parenting, periorbital puffiness, phayngeal hypotonia, Plagiocephaly, PPRM, premature baby, premature birth, prematurity, preterm birth, preterm premature rupture of membranes, projectile vomiting, prominent forehead, puffy eyes, reflux, refusing feeds, respiratory infections, sensory perception, sociable, soft dysmorphic features, systolic murmur, tongue-tie, umbilical hernia, unsafe swallow, video fluoroscopy, VSD | Leave a comment

16 May 2014 – Toby’s medical history to date – Actual age: 32+5 weeks / Corrected age: 25 weeks…

Posted on October 28, 2014 by florencejoy

Upon writing a letter to a friend of my parents-in-law, who works in the medical profession, seeking advice as to how to move forward, I had to bring my records of Toby’s medical journey up to date. Here they are, … Continue reading →

Posted in Toby | Tagged 24 hour pH probe test, 32+2 weeks gestation, abdominal pain, anti-reflux milk, aspirating milk, aspiration, barium x-ray, bilateral inguinal hernia, bolus feeding, breathing difficulties, breathlessness, bronchiolitis, cardiologist, children's health, choking, chromosome check, chronic congestion, colic, colicky, constipation, coughing, cow's milk allergy, cow's milk protein hypersensitivity, delayed gastric emptying, dietician, Domperidone, early weaning, Enfamil AR, expressing, feeding, feeding concerns, feeding diary, feeding pump, feeding therapy, forceful vomiting, gagging, high respiratory rate, hole in the heart, medical history, MRI scan, neonatal unit, neurological, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, Omeprazole, palivizumab, parenting, pneumonia, poor feeding, poor weight gain, premature, Prevention and Treatment of Tube Dependency in Infancy and Early Childhood, projectile vomit, pyloric stenosis, reflux, refusal to feed, RSV vaccine, SAGE, SALT, second opinion, silent aspiration, silent reflux, SMA Gold Prem 2, Speech and Language Therapy, starvation techniques, suck, syringe feeding, tongue thrusting, tongue-tie, tongue-tie release, tube dependency, tube feeding, tube weaning, umbilical hernia, unsafe swallow, video fluoroscopy, VSD, weaning, weight dropping off centiles, wheezing | Leave a comment

14 February 2014 – Letter to gastroenterologist…

Posted on October 26, 2014 by florencejoy

Forgive me for using this email address to try to get a message to the gastroenterologist. We are actually due to be seeing him in his NHS clinic on 27/02/14 – after having heard from Toby’s Speech And Language Therapist … Continue reading →

Posted in Toby | Tagged 32+2 weeks gestation, aspiration, bilateral inguinal hernia, breathing difficulties, children's health, chronic congestion, cow's milk protein hypersensitivity, CPAP, Enfamil AR, feeding, feeding concerns, high respiratory rate, NG tube, nil by mouth, NNU, Nutramigen AA, Nutramigen Lipil 1, paediatric gastroenterologist, palivizumab, parenting, poor feeding, prematurity, reflux, RSV vaccine, SALT, tongue-tie, tongue-tie release, tube feeding, umbilical hernia, video fluoroscopy, VSD | Leave a comment

Phew!

Posted on August 13, 2014 by florencejoy

I am sitting back in ‘our spot’ in the Special Care nursery at our local hospital Neonatal Unit – Toby’s home for the last one month and three days (minus a rather ‘hairy’ two night sleep-over elsewhere!) All the tubes … Continue reading →

Posted in Toby | Tagged baby, children's health, faith, feeding, God's goodness, hernia, hope, horizon, hospital, inguinal hernia, neonatal unit, NNU, operation, oxygen saturation levels, parenting, premature baby, premature birth, prematurity, progress, Special care unit, tongue tie division, tongue-tie, trust, trusting God | Leave a comment

Toby’s hernia op today…

Posted on August 13, 2014 by florencejoy

This morning I met the anaesthetist, who was happy to go ahead and anaesthetise Toby for his hernia operation. He had no feeds from 8am in preparation and at 3.45pm I kissed Toby goodbye at the door to theatre. I … Continue reading →

Posted in Toby | Tagged AVSD, baby, children's health, congenital heart disease, family life, Father's arms, feeding, feeding difficulties, heart problem, hernia, hospital, ICU, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe in lung collapsed, motherhood, neonatal unit, NNU, operation, parenting, perseverence, premature baby, premature birth, prematurity, reaction to anaesthetic, tongue tie division, tongue-tie, trouble breathing, ventilator | Leave a comment

To my friend, Jean…

Posted on August 13, 2014 by florencejoy

Dear Jean, Quick update for you as I was just letting family know the following for now… Anaesthetist happy to go ahead with hernia op. Will be this afternoon, though no time as yet. Will no doubt stay in at … Continue reading →