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Tag Archives: premature birth
Whisperings of You…
Found this little self-portrait that our boy drew in Bubbles, his old children’s group at church – aged about 3 ☺️ It’s almost his 8th birthday but it was eight years ago today that I had a bit of a shock … Continue reading
Tobias! – Two years on…
Tobias! Toby turned two at the end of September. We had an amazing few weeks of hospital discharges around that time! Gastroenterologist Five days before Toby’s birthday, the gastroenterologist said ‘farewell and all the best’ to the little fella, with … Continue reading
Posted in Toby
Tagged baby, cardiologist, children's health, cow's milk allergy, cow's milk protein allergy, cow's milk protein hypersensitivity, Downs Syndrome, echocardiogram, enlarged heart, feeding, feeding aversion, feeding concerns, first word, geneticist, hole in the heart, hospital, hospital discharge, Left pulmonary artery stenosis, micro-array CGH, microarray-based CGH, microarray-based comparative genomic hybridisation, Neonatal Unit Consultant, NG tube, paediatric gastroenterologist, parenting, Prader-Willi Syndrome, premature baby, premature birth, projectile vomit, SALT, speech and language therapist, Speech and Language Therapy, speech delay, thickened left ventricle, tube feeding, Ventricular Septal Defect, VSD, Williams Syndrome
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I gave birth to a premature, 32 week old baby entirely alone in the hospital’s ANTEnatal ward…
1 November 2015 – Letter of complaint to the hospital where Toby was born… ~ Dear sir/madam, How it has taken me quite this long to finally sit down and write to you is quite incredible and yet not a … Continue reading
Posted in Toby
Tagged antenatal, baby, birth, child birth, childbirth, children, children's health, complaint, delivery, family life, gave birth alone, hospital, labour, letter of complaint, motherhood, negligence, newborn, NHS, parenting, pregnancy, premature baby, premature birth, Women's health
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Fact 30/30 – I delivered Toby on my own…
January 15th 2014 Fact 30/30 I delivered Toby on my own… 2013 was, I think, the most difficult of my life. Very early on in the year, just three days after my birthday in fact, an early pregnancy scan revealed … Continue reading
Posted in #30til30
Tagged 2 Corinthians, 2 Corinthians 12:19, aloneness, answered prayer, baby, bereavement, bilateral inguinal hernia, blessing, child birth, children's health, compassion, contractions, death, delivery, Emmanuel, faith, God's faithfulness, God's goodness, God's presence, God's provision, GORD, grace, grief, healing, holes in the heart, Immanuel, impossibility, losing a baby, losing a child, miracles, miscarriage, missed miscarriage, motherhood, neonatal unit, parenting, possibility, prayer, pregnancy, premature baby, premature birth, premature labour, prematurity, unborn baby
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22 November 2013 – A mixed bag…
Today, Friday 22 November, marks Toby’s due date and meant-to-be birthday! Ha ha! We all know by now that he was a little impatient and decided to make his entrance in to the world nearly 8 weeks ago! So is … Continue reading
Posted in Toby
Tagged 40 weeks, 7+5 weeks, cardiologist, children's health, diuretics, due date, faith, friendship, full term, generosity, God's faithfulness, hernia, inguinal hernia, kindness, love, nothing is impossible with God, parenting, prayer, premature baby, premature birth, prematurity, redundancy, support, VSD
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16 November 2013 – Some news from our family…
My updates are few and far between now I realise – at least in contrast to the frequency I wrote them in the first 5/6 weeks of Toby’s life! We are tired now that he is home. Tired in a … Continue reading
Posted in Toby
Tagged blessed, bottle feeding, breastfeeding, challenged, children's health, church, church family, cling on, community, discouraged, diuretics, downhearted, ebm, enlarged heart, expressed breast milk, expressing, faith, feeding, fellowship, fluid on lungs, friendship, happy, love, mighty God, parenting, practical support, prayer, premature baby, premature birth, prematurity, support, tempted, tired, VSD
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5 November 2013 – Toby’s cardiology review…
Thank you for your messages/emails this morning, remembering our appointment with the cardiologist. We have just returned from there, with good news… The cardiologist diagnosed Toby with having a VSD (Ventricular Septal Defect) as opposed to an AVSD (Atrioventricular Septal … Continue reading
Posted in Toby
Tagged abdominal pain, amino acid based formula, Atrioventricular Septal Defect, AVSD, baby, blessed, blessing of family, body's natural way of mending itself, cardiologist, cardiology review, children's health, coincidence, congenital heart disease, count your blessings, echocardiogram, encouragement, faith, feeding, God in the details, God in the small things, God with us, God's faithfulness, God's intervention, healing, hernia, inguinal hernia, love, nappy explosion, open heart surgery, parenting, prayer, prayer request, premature baby, premature birth, prematurity, small mercies, trust, trust Him with the bigger things, trusting God, Ventricular Septal Defect, VSD, windy baby
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3 November 2013 – Another hernia!
This morning, much to our dismay, we found another hernia on the other side of Toby’s groin, his left side. We can’t quite believe it! We go to the cardiologist on Tuesday for Toby’s heart review so we think we … Continue reading
Posted in Toby
Tagged AVSD, bilateral inguinal hernia, cardiologist, children's health, congenital heart disease, encouragement, faith, friendship, healing, heart problem, hernia, inguinal hernia, motherhood, operation, parenting, prayer, prayer request, premature baby, premature birth, prematurity, umbilical hernia
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2 November 2013 – Toby’s HOME!!!!
Tobias Asher Jacob… 35 days… 37 weeks & 1 day gestation… Due date 22 November… Birthday 29 September… Birth weight 1.790kg… Current weight 2.525kg… What a soldier! What a good God! :-) xxxxx
Posted in Toby
Tagged 2.525kg, 35 days old, 37+1 weeks gestation, answered prayer, Asher, baby, bringing baby home, children's health, family life, God's goodness, home, hospital, Jacob, neonatal unit, NNU, parenting, perseverence, premature baby, premature birth, prematurity, Tobias
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Phew!
I am sitting back in ‘our spot’ in the Special Care nursery at our local hospital Neonatal Unit – Toby’s home for the last one month and three days (minus a rather ‘hairy’ two night sleep-over elsewhere!) All the tubes … Continue reading
Posted in Toby
Tagged baby, children's health, faith, feeding, God's goodness, hernia, hope, horizon, hospital, inguinal hernia, neonatal unit, NNU, operation, oxygen saturation levels, parenting, premature baby, premature birth, prematurity, progress, Special care unit, tongue tie division, tongue-tie, trust, trusting God
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1 November 2013 – Update…
The intubator has now been removed and Toby is breathing mostly on his own, but he now has the support from a CPAP machine (continuous positive airway pressure). His respiratory rate is higher than the normal range at the moment. … Continue reading
Posted in Toby
Tagged anaesthetic, baby, blood acidity, blood gas levels, breathing difficulties, chest x-ray, children's health, continuous positive airway pressure, CPAP, Emmanuel, God is with us, hernia, hospital, ICU, Immanuel, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe of lung collapsed, motherhood, neonatal unit, NNU, parenting, premature baby, premature birth, prematurity, reaction to anaesthetic, respiratory failure, ventilator
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Toby’s hernia op today…
This morning I met the anaesthetist, who was happy to go ahead and anaesthetise Toby for his hernia operation. He had no feeds from 8am in preparation and at 3.45pm I kissed Toby goodbye at the door to theatre. I … Continue reading
Posted in Toby
Tagged AVSD, baby, children's health, congenital heart disease, family life, Father's arms, feeding, feeding difficulties, heart problem, hernia, hospital, ICU, inguinal hernia, Intensive Care Unit, intubated, IV fluids, lobe in lung collapsed, motherhood, neonatal unit, NNU, operation, parenting, perseverence, premature baby, premature birth, prematurity, reaction to anaesthetic, tongue tie division, tongue-tie, trouble breathing, ventilator
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To my friend, Jean…
Dear Jean, Quick update for you as I was just letting family know the following for now… Anaesthetist happy to go ahead with hernia op. Will be this afternoon, though no time as yet. Will no doubt stay in at … Continue reading
Posted in Toby
Tagged baby, children's health, encouragement, faith, faithfulness, feeding, feeding difficulties, friendship, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, perseverence, prayer, prayer request, premature baby, premature birth, prematurity, tongue tie division, tongue-tie
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30 October 2013 – Some progress…
Ed and I prayed specifically on Monday that God would put people across Toby’s path who would make the right phone calls, send the right letters etc. in order to move things along. I arrived at hospital yesterday to discover … Continue reading
Posted in Toby
Tagged answered prayer, baby, children's health, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, progress
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29 October 2013 – Update on hernia op etc.
So, no date set for Toby’s hernia operation yet. It will not be today, as we had thought. The anaesthesiologist has said that he/she wants Toby to have a cardiology report before they decide if they are happy to administer … Continue reading
Posted in Toby
Tagged anaesthesiologist, baby, cardiologist, cardiology, children's health, delay, faith, general anaesthetic, God is good, God's faithfulness, God's ways, heart condition, hernia, hospital, inguinal hernia, neonatal unit, NNU, operation, parenting, patience, peace, premature baby, premature birth, prematurity, Romans 8, Romans 8:28, timing, trust, trusting God, waiting
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A most confusing day…
It has been such a mixed week. On Wednesday Toby turned a massive corner with his feeds – literally overnight. He is now waking up and demanding every feed and loving to suckle. Taking complete bottles and feeding really well … Continue reading
Posted in Toby
Tagged anti-climax, baby, children's health, coming home, disappointment, discharged, faith, feeding, God's faithfulness, God's goodness, God's plan, hernia, hospital, inguinal hernia, miscommunication, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, progress, rooming in, SCBU, setback, shifting emotions, Special Care Baby Unit, timing, trust, trusting God
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He’s not home yet :-(
I shared news too soon. Forgive me. Toby is not home with us. He has a hernia (which was discovered on Wednesday). We had been told that he could come home with it, as it was still soft, and that … Continue reading
Posted in Toby
Tagged anti-climax, baby, children's health, deflated, disappointment, faith, God's faithfulness, God's goodness, God's plan, hernia, hospital, inguinal hernia, miscommunication, neonatal unit, NNU, operation, parenting, prayer, premature baby, premature birth, prematurity, sadness, timing, trust, trusting God
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