-
Recent Posts
Archives
- January 2024
- October 2021
- September 2021
- May 2021
- February 2021
- October 2020
- September 2020
- October 2019
- March 2019
- October 2018
- May 2018
- April 2018
- December 2017
- November 2017
- January 2016
- November 2015
- July 2015
- May 2015
- March 2015
- February 2015
- January 2015
- November 2014
- October 2014
- August 2014
- July 2014
- December 2013
- June 2013
- March 2013
- February 2013
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
Meta
Tag Archives: hole in the heart
Tobias! – Two years on…
Tobias! Toby turned two at the end of September. We had an amazing few weeks of hospital discharges around that time! Gastroenterologist Five days before Toby’s birthday, the gastroenterologist said ‘farewell and all the best’ to the little fella, with … Continue reading
Posted in Toby
Tagged baby, cardiologist, children's health, cow's milk allergy, cow's milk protein allergy, cow's milk protein hypersensitivity, Downs Syndrome, echocardiogram, enlarged heart, feeding, feeding aversion, feeding concerns, first word, geneticist, hole in the heart, hospital, hospital discharge, Left pulmonary artery stenosis, micro-array CGH, microarray-based CGH, microarray-based comparative genomic hybridisation, Neonatal Unit Consultant, NG tube, paediatric gastroenterologist, parenting, Prader-Willi Syndrome, premature baby, premature birth, projectile vomit, SALT, speech and language therapist, Speech and Language Therapy, speech delay, thickened left ventricle, tube feeding, Ventricular Septal Defect, VSD, Williams Syndrome
Leave a comment
28 July 2014 – All things Toby…
Hello friends, It’s been over three weeks since our last update so I thought I would fill you in on news from recent hospital visits and progress etc. A few weeks ago I was reading over some of those first … Continue reading
Posted in Toby
Tagged answered prayer, AVSD, blessing of life, breathing difficulties, bring your soul into blossom, cardiologist, children's health, chromosome check, cow's milk allergy, cow's milk protein hypersensitivity, cranio-facial, death, diuretics, eternity, everlasting love, faith, faithfulness, feeding, feeding concerns, feeding problems, friends, G-tube, geneticist, gift of children, gift of life, glimpses of eternity, God's faithfulness, gratitude, gross motor delay, healing, heaven, hole in the heart, hope, lyrics, Metopic Synostosis, mild low tone, miracle, music, NG tube, Nutramigen AA, parenting, Prader-Willi Syndrome, SALT, short memories, song, songwriting, Speech and Language Therapy, swallow study, thankfulness, the blossoming soul, trust, tube feeding, video fluoroscopy, VSD, weaning
Leave a comment
27 November 2013 – Ed’s work situation & Toby’s heart etc.!…
So, tomorrow is Ed’s last day working for the property company, where he has worked as an electrician in their maintenance wing for just over a year now. You will remember from my last update that they gave him a … Continue reading
Posted in Toby
Tagged baby, cardiology, children's health, diuretics, feeding, feeding difficulties, healing, hernia, hole in the heart, inguinal hernia, laboured breathing, open heart surgery, parenting, patience, petition, prayer, prematurity, recessing under rib cage, redundancy, siblings, stress, toddler, VSD, waiting, weariness
Leave a comment
13 October 2013 – Discovered a heart problem…
We discovered yesterday that Toby has a problem with his heart. It is a form of congenital heart disease, called an AVSD. It’s basically a hole in the heart, between the two chambers, which means that the blood from both … Continue reading
Posted in Toby
Tagged abdominal pain, AVSD, baby, breathing difficulties, cardiologist, children's health, complete AVSD, congenital heart disease, faith, God is good, God's faithfulness, God's goodness, healing, heart concerns, heart problem, hole in the heart, holes in the heart, hospital, neonatal unit, NNU, open heart surgery, parenting, prayer, prayer request, premature birth, prematurity, rooming in, Tobias, trust, trusting God
Leave a comment